Seeking Sponsors for Meningioma Awareness Day 2012
“A year after my surgery, you have helped me to understand what I go through each day and brought humor, understanding, and information to me in a compassionate and respectful way—thank you,” (Meningioma Awareness Day participant).
Primary brain tumors affect more than 600,000 people in the United States. Meningiomas, the most common type, account for 34.4% of them (CBTRUS, American Brain Tumor Association Facts and Statistics, 2008). These tumors can have devastating effects. Some are inoperable due to their location in the brain, and may cause significant permanent disability. When Meningiomas are removed, it is impossible to predict or prevent tumor regrowth, meaning most survivors must monitor their status for the rest of their lives.
Too little is being done to research the causes and treatment options for the disease. The Brain Science Foundation (BSF) works to change this by funding some of the most advanced research into primary brain tumors. Collaborating with a number of the world’s leading minds in the neurosciences, we are uniquely positioned to present Meningioma Awareness Day: the world’s premiere educational event for Meningioma patients and their caregivers. This patient-centered event provides information and strategies for coping with and managing Meningiomas.
The Growing History of Meningioma Awareness Day
On April 27 and 28, 2012, the BSF once again brings together persons affected by Meningiomas with doctors, researchers, and other medical professionals with extensive experience in this disease. This is our fifth Meningioma Awareness Day, which gives participants a full day of educational discussions, lectures, and opportunities to meet others. An opening reception held the evening before features one-on-one discussions between patients and medical experts who can answer their questions.
Our relationship with leading Boston hospitals enables access to a world-class multidisciplinary team of experts involved in the research, diagnosis, and treatment of brain tumors. The faculty will feature speakers from Brigham and Women’s Hospital, Children’s Hospital Boston, the Dana-Farber Cancer Institute, and Harvard Medical School.
About the Event
Meningioma Awareness Day provides a holistic approach to brain tumor understanding, treatment, and recovery. Collaboration exists between professionals in psychological, medical, psychological, financial, rehabilitative, and social fields to provide the participants with a comprehensive and understandable body of knowledge. In one day, in one location, more than 300 participants discuss a number of topics related to their condition. They listen to tips about how to navigate the insurance system and how to maximize the patient-neurosurgeon relationship. They hear patient testimonies as well as insight and advice from others touched by brain tumors, learning more about themselves, the loved ones joining the fight, and the greater Meningioma community. We create a supportive and intellectual environment to empower patients to be active in their treatment, and to assure them that they are not alone in this process.
Meningioma Awareness Day participants come from all walks of life. Despite an estimated cost per person of $200 to run the event, we set registration fees at only $35 to be as inclusive as possible. In addition, we award scholarships on a need basis. Your sponsorship would benefit patients not otherwise able to attend this meaningful event.
About the Brain Science Foundation
Steven R. Haley and his wife, Kathleen Haley, established the BSF in 2002 following Steven’s treatment for Meningioma in 1997. The Foundation works to find a cure for primary brain tumors by advancing the understanding of brain function and patient care. The Foundation supports cutting edge research in all areas related to primary brain tumors, from developing and testing new treatments to epidemiological studies.
To date, the BSF has committed over $12 million toward research and education. Notable projects include a study of the environmental, genetic, pathological and clinical variables associated with Meningioma risk by Dr. Elizabeth Claus, M.D., Ph.D. This work is at the forefront of research examining Meningioma risk. Based on pilot data generated from BSF seed project grants, Dr. Claus leveraged $9.5 million from the National Institute of Health (NIH). Additionally, Dr. Alexandra Golby, M.D., helped in the development of the first-of-its-kind image guided surgery suite, AMIGO (Advanced Multimodality Image-Guided Operating room), which has enabled MRI, CT, PET, fluoroscopic, and electrophysiologic guidance to be integrated and presented to the surgeon during surgery. Her research has received funding from NIH and Brigham and Women’s Institute for the Neurosciences, alongside the BSF. These projects are mere glimpses of the national and international positive impact on patients and the field of neurosurgery that the BSF has played a significant role.
Support Meningioma Awareness Day
Meningioma Awareness Day’s continued success depends on charitable donations. We hope you’ll join us, and continue your dedication to improving patient quality of life today!
As a key sponsor of Meningioma Awareness Day, you will receive a number of benefits including:
- The opportunity to join us on Meningioma Awareness Day to meet members of the Brain Science Foundation community, learn interactively about new advances for patients with primary brain tumors, and see the critical difference that your support has meant for participants at the event;
- Prominent listings on program collateral including the program book, sponsor slide, website, social media, and BSF newsletter;
- Your company logo prominently displayed at event on both Friday evening for our one-on-one sessions with medical experts, and during the full-day program on Saturday; The chance to partner in a life-changing event for hundreds of people and joining the BSF community of patients, researchers, medical professionals, and other prominent members of the medical community.
Join Us!
We welcome the opportunity to tell you more about Meningioma Awareness Day! Please give us a call at 781-239-2903 and ask to speak to Beth, our Director of Development and Engagement, or send an email to beth@brainsciencefoundation.org.
“I appreciated the way the doctors were able to make such complicated information accessible. Thank you!”
—Family Member/ Friend, Edgartown, MA
“Thank you BSF! Without you I’d still be fumbling in the dark and scary ‘Rabbit Hole’! Looking forward to the next MAD and all the good folks who will attend.”
—Patient, San Diego, CA
“This was my first time at MAD and I felt I it was a great experience; very informative. I found it especially helpful to speak one on one with the doctors and also other meningioma patients”
—Patient, Warwick, NY