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The Meningioma Project
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Brain Science Foundation, Meningioma, Meningiomas, primary brain tumors, The Meningioma Project, Dr. Peter Black, Steven Haley

Kick-off to Meningioma Awareness Day Reception

 
BSF Founder Steven Haley with BSF PIs Dr. Elizabeth Claus and Dr. Rona Carroll  and BSF Advisor Barbara Bass, Ph.D
On the evening of Friday, May 4th, the Brain Science Foundation  family – including Board Members, Advisory Board Members, neurosurgeons and researchers from the Brigham and Women’s Hospital - enjoyed a cocktail reception to kick off the first ever Meningioma Awareness Day. Guests, including conference presenters and panelists, enjoyed the opportunity to come together and celebrate the partnership between th
 
BSF Board Member and Medical Advisor, Dr. Peter Black, Barbara Bass, and BSF supporter, Barbra Levin
e Brain Science Foundation and

the Brigham and Women’s Hospital and the momentum behind their joint mission to advance meningioma research, improve treatment and patient care and increase awareness around these tumors.

Meningioma Awareness Day is just one of the initiatives of The Meningioma Project, which (as the Brain Science Foundation’s flagship project) aims to eradicate meningioma through prevention, 100% effective treatment or a cure.

As noted by both B
 
BSF Co-Founder, Kathy Haley and Dr. Rona Carroll
SF founder Steven Haley and Executive Director Kristin O’Sullivan, working as a team in preparation of the Day strengthened the feeling of togetherness among not only the BSF and the Hospital but among the many distinct groups of determined people making every effort to support the Brain Science Foundation and Brigham and Women’s Hospital in their fight against meningioma.
 
BSF PI Nathalie Agar and BSF Board Trustee Jack Delaney


The day-long conference was held on May 5 and focused exclusively on the health issues experienced by patients of meningioma, the most common type of all primary brain and central nervous system (CNS) tumors.

Although more than 150,000 Americans are living with a meningioma or have been treated for a meningioma, there is little public awareness of this tumor type. As the

 
BSF Executive Director Kristin O’Sullivan and staff members, Trisha Winton, Jaime Dahlke and Tammy Gilson-Hodge
first ever Meningioma Awareness Day, this conference provided attendees with insight into the latest advancements in meningioma research, diagnosis, and treatment and offered commentary and coping strategies for the many challenges associated with this diagnosis.

Co-hosted by the Brain Science Foundation and Brigham and Women’s Hospital, the conferenc

 
BSF Advisor Nancy Conn-Levin (center), daughter (left) and friend
e featured presentations by a multidisciplinary team of clinicians and researchers at Brigham and Women's Hospital as well as meningioma survivors and caretakers.

Topics that were addressed included: epidemiology and genetics associated with meningioma; the latest techniques for screening; novel drug therapies and other advancements in treatment and surgery.

Health co
 
BSF PI Dr. Mark Johnson, Steven Haley and Trisha Winton
mplications such as headaches and

seizures were also discussed, as well as the many advances in ongoing patient care at The Brigham and Women’s Hospital Meningioma Center of Excellence.

To see the agenda, click here.