Meningioma Awareness Day 2009:
A Roadmap to Your Journey with Meningioma
October 3, 2009, 8:00 AM - 5:00 PMJoseph B. Martin Conference Center, Harvard Medical School
Boston, Massachusetts
About Us
The Brain Science Foundation is an independent, 501(c)(3) nonprofit, supporting organization to Brigham and Women’s Hospital and was established by high-tech entrepreneur, Steven Haley and wife, Kathleen, following Steven’s treatment for meningioma in 1997. The Brain Science Foundation is dedicated to finding a cure for meningioma and other primary brain tumors and to advancing the understanding of brain function as it relates to these tumors. The Brain Science Foundation supports basic and clinical research, promising new treatments, and opportunities to improve the quality of patient care.
About the Event
The Brain Science Foundation (BSF) is pleased to announce its third annual Meningioma Awareness Day (MAD) for patients and survivors of meningioma, as well as caregivers, families and friends.
Join leading clinicians and healthcare professionals on Saturday, October 3, 2009, from 8:00 AM - 5:00 PM, at the state-of-the-art Joseph B. Martin Conference Center at Harvard Medical School in Boston, Massachusetts, to learn about the latest research advancements in meningioma diagnosis, treatment, and therapy as well as related health and support issues.
Our MAD 2009 program will serve as a roadmap in helping patients navigate the various stages in what for some will be a life-long journey with meningioma
- Education: This focus in our program will provide you with the latest information regarding your diagnosis and details about the opponent with which you are in battle.
- Empowerment: To help you make informed decisions, discussions will focus on various issues such as managing medications and pursuing new therapies, as well as developing relationships with doctors and health professionals, working with insurers, and other critical topics.
- Inspiration: Patient testimonies as well as insight and advice from others touched by meningioma will help you learn not only about the most commonly diagnosed brain tumor, but also more about yourself, the loved ones joining you in the fight, and the greater meningioma community.
In addition, MAD 2009 will provide a forum for developing relationships with other patients, doctors, and community members. This year's intimate venue will provide you with the opportunity to reunite with old acquaintances and make new freinds over a complimentary breakfast, lunch, and special dessert bar.
NEW THIS YEAR: As an Accredited Program for Nurses, MAD 2009 will offer a special look at the role of nurses in caring for meningioma patients. Nurses interested in CEU and registration details should contact Tammy Gilson-Hodge at TGILSON-HODGE@PARTNERS.ORG or 617-525-8395.
Our MAD 2009 Program Topics will include:
- Maximizing the patient-neurosurgeon relationship
- What children can teach us about meningioma
- Managing medications and their side effects
- Meningioma and hormones
- Integrative medicine
- New molecular therapies for recurrent and inoperable meningioma
- Spinal meningioma
- Navigating insurance issues
- Caregiving
- Whole-Person / Quality-of-Life Centric Care
Presenters
For more information on this year's Meningioma Awareness Day speakers, please click here.
Program Agenda
Click here to download Printable PDF of Program
7:45 - 8:50 AM | Breakfast & Registration |
9:00 - 9:15 AM | Welcome and Opening Remarks
Steven Haley, BSF Founder and President
Arthur Day, M.D., Chair of the Department of Neurosurgery, Brigham and Women’s Hospital |
9:15 - 9:25 AM | BSF Video |
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9:25 - 9:40 AM | Your Opponent - Meningioma 101
Peter Black, M.D., Ph.D., Franc D. Ingraham Professor of Neurosurgery at Harvard Medical School and Founding Chair of the Department of Neurosurgery at BWH |
9:40 - 9:55 AM | When the Big One Hits - Surviving the Aftershocks
Liz Holzemer, Founder, Meningioma Mommas |
9:55 - 10:10 AM | The Value of an Academic Health Sciences Center in the Care of Brain Tumor Patients
A. John Popp, M.D, Department of Neurosurgery, BWH |
10:10 - 11:10 AM | The Promise of Personalized Medicine/ Meningioma Science PanelAlexandra Golby, MD, BWH Department of Neurosurgery
Nathalie Agar, PhD, BWH Department of Neurosurgery
Edward Smith, MD, Children's Hospital Boston Department of Neurosurgery
Mark Johnson, MD, PhD, BWH Department of Neurosurgery |
11:10 - 11:30 AM | Break |
11:30 - 11:50 AM | Maximizing Your Relationship with Your Neurooncologists/New Molecular Therapies for Meningioma/Clinical Trials
Andrew Norden, MD, BWH Department of Neurology/Dana-Farber Cancer Institute
Patrick Wen, MD, Director, Division of Neuro-oncology, BWH |
11:50 AM - 12:10 PM | What Children Can Teach Us About Meningioma
Joseph Madsen, MD, Department of Neurosurgery, Children’s Hospital Boston |
12:10 - 1:10 PM | Lunch |
1:10 - 1:12 PM | Special Announcement from Meningioma Mommas |
1:12 - 1:30 PM | Latest Update on the Meningioma Consortium
Elizabeth Claus, PhD, MD, BWH Department of Neurosurgery, Professor, Yale University |
1:30 - 1:40 PM | Fatigue & Other Symptoms Following Meningioma Treatment
Nancy Conn-Levin, BSF Advisor, Health Educator and Meningioma Survivor (see spotlight) |
1:40 - 2:00 PM | Meningioma Surgery
Peter Black, MD, PhD, Franc D. Ingraham Professor of Neurosurgery at Harvard Medical School and Founding Chair of the Department of Neurosurgery at BWH |
2:00 - 2:15 PM | Spinal Meningioma
John Chi, MD, PhD, BWH Dept of Neurosurgery |
2:15 - 2:35 PM | The Role of Neuropsychiatry in Managing a Meningioma Diagnosis
David Silbersweig, MD, Chair of the Department of Psychiatry, Brigham and Women's Hospital (see spotlight) |
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2:35 - 2:55 PM | Complementary and Integrative Medical Therapies
Donald Levy, MD, BWH Osher Clinical Center For Complementary and Integrative Medical Therapies |
2:55 - 3:15 PM | Break |
3:15 - 4:00 PM | Brain Tumor Board
Featuring an interdisciplinary team of Doctors led by Debra LaFrankie, RN, Dana-Farber/Brigham and Women’s Cancer Center |
3:15 - 3:35 PM | BREAKOUT SESSION IThe Economics of Caring for Your Meningioma
Andrea Scanlon, RN, Case Manager, BWH; Donna Dello Iacono, RN, PhD
OR
Whole-Person/Quality-of-Life Centric Care
Amanda Moment LICSW, Dana-Farber/Brigham and Women’s Cancer Center |
3:40 - 4:00 PM | BREAKOUT SESSION IIThe Physiological & Emotional Toll of Caregiving
Nancy Olsen Bailey, RN, MBA, BWH Dept. of Neurosurgery
OR
Non-hormonal Therapies for Menopausal Symptoms
Maria Yialamas, MD, Division of Endocrinology, Diabetes, and Hypertension, BWH |
3:15 - 4:00 PM | This afternoon breakout will also feature a round-table session led by Eric Galvez, PT, DPT, CSCS, to discuss Issues Faced by Young Adults with Meningioma |
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4:00 - 4:45 PM | Patient Panel |
4:45 - 5:00 PM | Closing Remarks
Steven Haley |
5:00 PM | Dessert Bar Reception |
| | Please note: Book signings by Dr. Peter Black, Liz Holzemer, and Eric Galvez will take place during the lunch and evening receptions |
Registration
Early Bird registration for MAD 2009 is open at a fee of $35. Registration received on or after Friday, September 4, will be charged at $45.
How to Register
Please click here to download registration form. Completed registration forms can be submitted:
To register by phone, please contact – Sarah Donnelly at 781-239-2903
Please make checks payable in U.S. dollars to Brain Science Foundation.
The BSF will provide onsite complimentary parking
Directions to Joseph B. Martin Conference Center
The Joseph B. Martin Conference Center at Harvard Medical School is a large glass building located directly across the street from the Boston Latin School. For directions by car and public transportation, please click here: http://www.theconfcenter.hms.harvard.edu/directions/
Accommodations
The BSF has arranged for special room rates at the following hotels, both of which are within a short distance from the venue:
Holiday Inn Brookline
1200 Beacon Street
Brookline, MA 02446
For reservations, please call: 617-277-1200
Event: Meningioma Awareness Day
Blocked: 25 Rooms
Dates: 10/2/09 & 10/3/09
Special Rate: $179.00 per night (plus taxes)
Parking: Included with hotel stay
Proximity to Conference: 1/2 mile from conference - shuttle bus from hotel to Longwood Medical Area available
Cut off date: September 3, 2009
Best Western Boston - The Inn at Longwood Medical
342 Longwood Avenue
Boston, MA 02115
For reservations, please call: 617-731-4700
Event: Meningioma Awareness Day
Blocked: 35 Rooms
Dates: 10/2/09 & 10/3/09
Special Rate: $189.00 per night (plus taxes)
Parking: Facilities available for guests at a flat nightly rate of $18.00
Proximity to Conference: Within walking distance
Cut off date: September 11, 2009
Generate Awareness in Your Own Community
The BSF encourages you to tell your local newspapers about your forthcoming partcpation in MAD 2009. Simply download our press release and send to your local journalists. For more information, call Sarah Donnelly at 781-239-2903.
We welcome any questions or suggestions you may have regarding MAD 2009.
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