Those living with the diagnosis of a primary brain tumor—including patients, survivors, caregivers, and family members—can draw from a wide range of online patient-support services that include content-rich informational sites, online communities and personal blogs.
The following information is provided as an additional resource for brain tumor patients and their loved ones:
- The American Brain Tumor Association maintains a comprehensive list of resources and support groups
- Meningioma Mommas is an international organization offering online support groups and information for both the newly diagnosed and long-time survivors.
- The Dana-Farber Cancer Institute offers a number of Brain Tumor Support Groups throughout the year and include a calendar.
- Pituitary Disorders Education & Support brings together thousands of patients, families, and medical professionals for the purpose of gaining a better and broader understanding of pituitary tumors and related endocrine disorders.
Please feel free to suggest other resources that we should consider adding to this list by contacting:
The Brain Science Foundation
Or emailing here.
The BSF does not endorse any specific link above and urges everyone to do research and consult a medical professional when it comes to making health decision.